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GidReform.org
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transcript of the talk as it was given at the 2009 WPATH conference in Oslo, Norway, June 19, 2009
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Diagnosis should center on gender dysphoria, which is distress associated with sexed characteristics of the body and/or social gender role
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should be large enough to encompass all of those who need it
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should be narrowly defined to only include those who are experiencing gender dysphoria, not to those who are merely gender non-conforming
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Gender Madness in American Psychiatry: Essays from the Struggle for Dignity,
by Kelley Winters (2008)
www.gendermadness.com
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Sexual and Gender Diagnoses of the Diagnostic and Statistical Manual (DSM),
A Reevaluation , Karasic and Drescher, Eds. (2005)
Order from IFGE
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Presentation to the 2009 WPATH Symposium, Oslo, Norway
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Summary of Proposed Diagnosis:
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Ehrbar,
Randall D., Psy.D.
Winters, Kelley, Ph.D.
Gorton, R. Nicholas, M.D
a
presentation to
The World Professional
Association for Transgender Health (WPATH)
2009 XXI Biennial Symposium
June 19, 2009
Oslo, Norway
Abstract:
Starting
with different beliefs and assumptions about appropriate diagnoses
for transgender and gender variant individuals suffering from gender
dysphoria, the members of this panel have reached similar
conclusions about desirable changes to diagnostic categories in the
next version of the DSM and ICD. Important points of agreement are
that revised versions of diagnoses such as GID, Transsexualism, and
GID in children 1) should center on gender dysphoria, which is
distress associated with sexed characteristics of the body and/or
social gender role, 2) should be large enough to encompass all of
those who need it including those with non-binary gender identities,
and those who do not wish to fully medically or socially transition
to the “opposite” gender, 3) should be narrowly defined
to only include those who are experiencing gender dysphoria (and are
therefore presumably in need of treatment), not to those who are
merely gender non-conforming. We will discuss the different premises
and constructs on which the three authors base their conclusions and
explore how despite these significant epistemological differences,
the same conclusions become apparent. We will also discuss placement
of diagnostic categories, nomenclature, “exit clauses”
for trans-people who no longer experience gender dysphoria, cultural
and sociopolitical significance of diagnostic categories and
discourses around such categories, and appropriate diagnosis of
distress primarily due to discrimination and oppression rather than
gender dysphoria.
Note:
This is largely a transcript of the talk as it was given at the 2009
WPATH conference in Oslo, Norway. At the end of the document we also
present some of the audience comments and responses during our
discussion at the end. Randall's
part of the presentation is in green,
Kelley's in red
and Nick's in blue.
Introduction:
We
come at this issue from a variety of different backgrounds and
viewpoints differing on whether there should be a diagnosis at all
or what kind of diagnosis it should be. When I
first approached Dr. Nick Gorton and Dr. Kelley Winters they both
were a bit skeptical, in fact, because they perceived that the other
had very different viewpoints. Yet we agree about fundamental
principles of treatment and rights for trans people. We may just
differ in the ways that we think these things can best be
accomplished. In the process of working on this talk we discovered
that not only do we share common basic principles, but even had
some common ground about utility of having a diagnosis and what
such a diagnosis should look like if there is a diagnosis. . We were
also able to generate compromises that could accommodate those
areas where we do have fundamental differences. One of the first
things we did in preparing for our talk was to write in 30 words or
less our fundamental beliefs about diagnosing transgender people
with an illness and what that does for the community.
Exercise:
In 40 words summarise your thoughts about:
Do
transgender people experience illness? Mental illness?
Regardless
of whether it is a (mental) illness, should it be kept in the DSM or
in the ICD?
Does
understanding transgenderism as illness help or hinder the civil and
medical rights movement for the community
On
the next slide we
are going to present our summaries, and while I present that and
before the end of the talk, I want you to write your own summary...
try to keep it under 40 words, but it can be as simple as just a
few. At the end we're going to look at some or all of them... you
don't have to write your name.
What
We Think:
Winters
- Individuals whose gender identity or expression differ from
assigned birth-sex are labeled mentally disordered in the DSM-IV-TR,
inflicting harmful social stigma and barriers to transition care.
Ehrbar
- Practically, diagnosis is needed for access. Conceptually, it
makes sense to categorize gender dysphoria as a mental health
disorder.
Gorton
- GID (by any name) belongs in DSM-V. Revisions can foster
acceptance among consumers without compromising scientific accuracy.
Diagnosis facilitates insurance coverage and disability protections.
We
also explicitly identified our common ground is with regard to
access to care, non-discrimination, social justice, and civil
rights. We have a good deal of common ground about how we think the
world should be. In fact, we suspect that most if not all of the
folks here at WPATH share these fundamental beliefs. , I
It's worth reminding ourselves that we do agree that trans and
gender variant people shouldn't be subject to discrimination, should
have access to health care and should have civil rights and
protections.
The
Authors' Shared Vision: -
End
discrimination on the basis of gender identity and expression
Gender
identity and expression that differ from assigned birth sex do not,
in themselves, constitute a mental disorder or an impairment in
competence
Hormonal
and/or surgical transition treatments to relieve gender dysphoria
are medically necessary
Insurance
and health care coverage for medically prescribed transition
treatment
Legal
recognition/documentation for all people that is consistent with
their gender identity and expression.
Reform
must fit everyone's needs, but as a social justice movement we must
weigh more heavily the needs of those least enfranchised.
What
is Your Vision? -
The
second exercise we invite you you to do is to identify any
fundamental principles on which you think people on all sides of
this issue can agree that we've missed. Briefly, exercise 1 is what
you think. whereas exercise 2 is the common ground on which we all
agree.
The
Purpose of Diagnostic Nosology: -
“The
use of a formal diagnosis is often important in offering relief,
providing health insurance coverage, and guiding research to provide
more effective future treatments” WPATH
Standards of Care, 2001
So
we come to the question of why do we diagnose things in the first
place? The primary reasons are that we want to be able to offer
treatments to people and to do so effectively. We also need to
describe and understand what we are treating. Since people tend to
have the same sorts of illnesses, it can be useful to know what
treatments are effective for people with a given illness as a group
instead of starting fresh with every individual. We also, in our
society believe that people should have access to health care.
However in one form or another payment for care is restricted to
care that is necessary and that treats an illness or significantly
promotes health. Thus we also use diagnoses as a standardized way to
describe what are real health problems. An example of this is the
ICD – the international classification of diseases, which
helps us know what is a disease and helps insurance payers know what
they should cover. In addition we want to be able to improve the
care we provide through medical research, so diagnostic categories
can be useful to help us define populations. This is the reason that
the DSM is the diagnostic and statistical
manual of mental disorders.
The
Conundrum: -
The
transcommunity and care providers have long been polarized by fear
that we must chose between stigma of mental illness and sexual
deviance or lose access to hormonal and surgical procedures as well
as disability protections.
One
of the problems with this question historically is that the trans
community has been divided about whether we should be classified as
a having a disease. This is one of the major points where there is a
lack of consensus on this panel. On one side people believe that
having a diagnosis is necessary to gain access to health care
services. They feel that it is important to ensure that we have a
diagnostic nomenclature so insurers will judge us as having a
condition for which there is necessary care and so that disabilities
protections will include us. On the other side, many feel that there
is an inherent harm in accepting the illness label and that this
label is used against
trans people in both legal situations and within the health care
arena to deny access rather than gain it.
Discourse
around removing or modifying the diagnosis, should be mindful of
issues concerning the broader disability rights movement. -
- When
discussing the stigma of mental illness we should refrain from
language that itself stigmatizes people with mental illness
Though
whichever side of this discourse one espouses, its very important
for us to remember that when talking about the stigma and negative
consequences for people with medical or mental health disabilities
we must refrain from using language that perpetuates the stigma. We
shouldn't do to others what we do not wish to be done to our
community.
“I
come from a people who gave the Ten Commandments to the world. Time
has come to strengthen them by three additional ones, which we
ought to adopt and commit ourselves to: thou shall not be a
perpetrator; thou shall not be a victim; and thou shall never, but
never, be a bystander”
-Yehuda
Bauer, Professor of Holocaust Studies Hebrew University of
Jerusalem
That
quote is important to consider. Even if we believe that transgender
people have no mental illness or any illness whatsoever, its
important that our community not be a bystander while others are
subject to the very discrimination that we think no one should
endure.
The
GID/TF Diagnoses Pose Barriers on Both Civil Liberties and Medical
Care Access:
The
current diagnostic nomenclature of disordered gender identity and
Fetishistic Transvestism has failed us on both issues of stigma and
transition care access. It is not a question of either/or; not of
one versus the other; it is a failure on both issues.
The
current diagnostic criteria for Gender Identity Disorder for Adults,
and Adolescents and for Children, lack clarity on who should be
diagnosed and who should not. Ambiguous language, preoccupation with
antiquated sex stereotypes, and incongruence with the definition of
mental disorder have confused care providers, medical policymakers,
and insurers, posing barriers to access to transition care.
Worse
yet, the specific diagnostic criteria and supporting text of the
current GID category contradict transition care and are more
congruent with the opposite approach – punitive
gender-conversion or gender-reparative treatments intended to shame
or suppress gender identity and expression which differ from
assigned birth sex roles.
...but
a better diagnosis can be used to advance both civil liberties and
medical care access
Supportive
care providers need better diagnostic coding to make transition
procedures available to individuals who require them. We believe it
is possible to replace GID with nomenclature in the DSM-V that
addresses both issues of social stigma and access to transition
care: reducing unfair stigma of mental illness and sexual deviance
while at the same time supporting rather than contradicting social
and/or medical transition.
Social
Stigma of Sexual Deviance:
A
full-page ad campaign last year was sponsored by Focus on the Family
in opposition to trans-inclusive civil rights legislation in
Colorado. It depicted transwomen as sexual predators in restrooms.
This is how transwomen are portrayed, this is the obstacle we face
each day in our communities, as a consequence of this unfair stigma
that is perpetuated and legitimized by the current GID and TF
nomenclature.
Political extremists increasingly cite the
American Psyhiatric Association directly in defaming gender variant
people. For example, a New Hampshire group stated in 2008:
“Is
New Hampshire ready to give civil rights to a behavior that is
classified as mental disorder by the ... APA?”
In 2007,
a Maryland extremist group dedicated an entire web page to
denouncing transgender civil rights based on the DSM. It
stated,
“’Gender Identity Disorder’ is
classified as a mental disorder by the American Psychiatric
Association. Legal protection against discrimination based on mental
illness is not provided for any other disorder, and there is no
rational explanation why it should be offered for this one. Those
who wish to assume a ‘gender identity’ contrary to their
biological sex are in need of mental health treatment to overcome
such disturbed thinking, not legislation to affirm it.”
Transition
Medical Care Access:
“Many
health insurance plans categorically exclude coverage of mental
health, medical, and surgical treatments for GID, even though many
of these same treatments, ... are often covered for other medical
conditions”
American
Medical Association Resolution 122
Last
year, the American Medical Association acknowledged that “Many
health insurance plans categorically exclude coverage of mental
health, medical, and surgical treatments for GID, even though many
of these same treatments, ... are often covered for other medical
conditions”
The role of the current GID and TF
categories in these barriers is illustrated by Dr. Paul McHugh,
former psychiatrist-in-chief at Johns Hopkins Hospital, who used
psychiatric classification to justify terminating gender confirming
surgeries there. He said,
“I concluded that to provide
a surgical alteration to the body of these unfortunate people was to
collaborate with a mental disorder rather than to treat it.”[7]
Dr.
Paul Fedoroff of the Toronto CAMH center (formerly the Clarke
Institute of Psychiatry) cited the GID diagnosis to urge elimination
of gender confirming surgeries in Ontario in 2000. He stated,
“TS
[transsexualism, in reference to the GID diagnosis] is also unique
for being the only psychiatric disorder in which the defining
symptom is facilitated, rather than ameliorated, by the ‘treatment.’
… It is the only psychiatric disorder in which no attempt is
made to alter the presenting core symptom.”
“RESOLVED,
That the AMA support public and private health insurance coverage
for treatment of gender identity disorder; and be it further
RESOLVED,
That the AMA oppose categorical exclusions of coverage for treatment
of gender identity disorder when prescribed by a physician”
American
Medical Association Resolution 122
In
contrast, the American Medical Association, the American
Psychological Association, and I'm very proud to say, WPATH have
issued public statements clarifying the medical necessity of
hormonal and/or surgical transition treatments for those who suffer
distress caused by deprivation of physical characteristics congruent
with their gender identity. Moreover, they have opposed healthcare
exclusion of trans and transitioning individuals. This is the model,
the new standard, that the we hope the American Psychiatric
Association will follow in the DSM-V and in their own public
position statements.
Recommendations
for Harm Reduction of the GID Diagnosis in the DSM-V:
The
DSM-V will likely impact public acceptance, civil rights, social
justice and medical care of gender variant people through the end of
the 2020s.
We
know that there will almost definitely be a diagnosis in the DSM V
and the ICD-11 which will affect the medical access and civil
rights of transgender people for many years; therefore, the
immediate issue is to improve the diagnosis so that it better
reflects the experience of trans people and is more useful in
supporting access to care and civil rights of trans people rather
than undermining them.
Exercise
3, Three Boxes: -

The
next exercise we invite you to do is to describe which
considerations you think are the most import in making decisions
about whether a diagnosis should
exist in the DSM and ICD and what that diagnosis should look like.
Please draw three boxes on your third card... label the first one
Scientific and Clinical validity, the second Civil Rights and Social
Consequences. And since we don't want to force anyone into binary
categories, there is a third box for other considerations.
Then
after you have your boxes drawn, you get 5 votes to put in those
boxes and you can divide your 5 votes among the factors you find
most important. If for example, you think Civil Rights and Social
Consequences are the only thing that should be considered, you can
put all 5 marks in that box and so forth.
Exercise
4, Three Humps: -
As
the result of a discussion in the WPATH Consensus Statement
Workgroup during this conference we added a fourth exercise to our
talk. This exercise is the result of a discussion where we tried to
gain consensus by trying to classify attitudes within a binary
system of belief (which is quite interesting coming from a group of
people who are transgressing boundaries or helping our patients
transgress boundaries.)
However
we came up with a model where while there are ends of the spectrum
that few people inhabit, there are three large humps that we can
identify on the spectrum where people tend to gather. The far left
end of the spectrum is that transgender people have no recognizable
diagnosis and that there should
be no diagnostic classification identifying transgender people in
any scheme – no diagnosis in the DSM-V, but also no diagnosis
in the ICD-11. The far right end of the spectrum is the belief that
the current DSM criteria are appropriate and should be kept as they
are without revision in DSM V. The first hump going left to right is
the group who feel it definitely isn't a mental illness and should
not at all be in the DSM but it should
be included in the ICD as a non-psychiatric diagnosis. The middle
hump takes a pragmatic attitude that it is in the DSM and our focus
should be on reforming the criteria to work better to help
transgender people access health care and acceptance in society.
People in this group may believe it is not a mental illness, or they
may not be sure whether it is, or simply not care whether it is,
simply focusing on pragmatic use. The most right-ward hump is those
people who believe that gender dysphoria makes sense as a mental
health condition, and thus is best classed in the DSM. However this
group also believes that the diagnosis should be changed in ways
similar to the middle hump so that it better serves transgender
people.
The
main difference between the middle and the right most hump is the
belief that it is actually a mental illness. The difference between
the middle and left most hump is the belief that gender dysphoria
should be kept in the DSM.
Focus
of Pathology on Gender Dysphoria:
Clarify
diagnostic criteria to reemphasize gender dysphoria:
Gender
identity per se is not a symptom
Remove
actions taken to resolve dysphoria from criteria (i.e. presenting in
desired gender role)
Remove
nonconformity to assigned birth sex from diagnostic criteria
The
conceptual center of the diagnosis is gender dysphoria, and the
criteria for GID in the DSM as well as Transsexualism in the ICD
should be modified to reflect this. It is clear from the experience
of trans people that their gender identity is not “the
problem,” nor is degree of gender conformity “the
problem.” Unfortunately, the current diagnostic criteria are
overly broad and also treat gender identity different from that
assigned at birth and gender non-conforming behavior as if they were
pathological, and actions taken to resolve gender dysphoria as if
they were symptoms
Gender
Dysphoria Is... -
Distress
with current
- physical
sex characteristics, (including anticipated pubertal changes for
youth)
- AND/OR
- ascribed
gender role that is incongruent with persistent gender identity
There
are two separate but related aspects of gender dysphoria—distress
with sexed aspects of the body, that is primary or secondary sex
characteristics and distress related to social gender role. Distress
with physical sex characteristics also includes anticipated
development of secondary sex characteristics, for example in
puberty. This is especially important for natal males who may
undergo distressing masculinization if testosterone is not
suppressed.
This
distress should be conceptualized as relative to the current
situation—the current state of the body and social gender
role, not the gender role assigned at birth or the body prior to
modification. People who have been able to access physical
interventions and are now happy with their body—great! They
no longer have anatomic gender dysphoria. Similarly, people who
have successfully been able to shift to a social gender role
congruent with their gender identity they no longer have social
gender dysphoria.
Clinical
Significance Criterion
Clarify
impairment in the clinical significance criterion to exclude
sequelae of societal intolerance, prejudice and discrimination.
Distinguish
distress of gender dysphoria, with physical sex characteristics or
ascribed social gender role, from distress caused externally by
societal or family intolerance.
The
DSM should never imply that to be a victim of prejudice is to be
mentally disordered.
While
it can be difficult to distinguish between internal distress and
distress which is influenced by stigma or minority stress, if a
person is happy with his/her/hir social gender role and physical
body, that person should not be diagnosed with this diagnosis. .
(Although they may be in remission—more on that later.)
Someone who is facing anti-trans discrimination may not need any
diagnosis—certainly being in a group which is subject to
discrimination is not diagnosable per se. If they are experiencing a
significant level of distress which qualifies a diagnosis in
another diagnositic category may be appropriate. Examples include
adjustment disorder, depression, anxiety, or even PTSD in cases of
extreme mistreatment. This is similar to how we would handle
diagnosis of someone who is being subject to discrimination for any
other
reason such as homophobia, classism, racism, sizism, etc.
Diagnosis:
Diagnosis
isn’t the same as etiology
Diagnosis
isn’t the same as treatment
A
clarification in the conceptual center of the diagnosis does not
necessarily change HOW treatment is done, but does change WHY
treatment is done
Measure
of successful treatment is remission of gender dysphoria:
Not
gender conformity, gender identity, or sexual orientation
Diagnoses
often capture diverse groups of clients who share a conceptually
central presenting concern. It is clear that there are a variety
of meaningful categories into which trans-people can be divided. At
a basic level, transmen and transwomen are different from one
another. However, it is not necessary to have separate diagnostic
categories for each identifiable subgroup of people with different
identities or gender expressions as the ICD currently attempts to do
with different diagnostic categories of Transsexualism and Dual Role
Transvestism. We only need to ask: does this person experience
gender dysphoria?
Diagnosis
is also distinct from treatment. One of the problems with the
current GID diagnosis is that it is worded in such a way as to imply
that treatment which facilitates transition is inferior to treatment
which encourages conforming with gender assignment at birth. The
conceptual why
of treatment should hinge upon the central concept of the
diagnosis—in this case gender dysphoria. If treatment helps
to resolve gender dysphoria, that treatment is successful. If it
does not, it is not. For example in the case of children, because
the current diagnostic criteria include a lot of criteria which
reflect gender role conformity, a provider working with a child to
behave in gender role conforming ways can say “this treatment
was successful—the child no longer meets the diagnostic
criteria.” Under a gender dysphoria based diagnosis a
clinician who believes that working with a child to be more
successful in behaving in a gender appropriate way will resolve the
gender dysphoria the child experiences could still use that
treatment. So the how
doesn’t necessarily change. But the measure of whether the
treatment is successful changes: the question become not is the
child gender conforming, but does the child experience gender
dysphoria?
Gender
Dysphoria in Children:
Reduce
stigma of psychosexual pathology for gender expression differing
from assigned birth-sex role.
Reduce
false positive diagnosis of gender nonconforming children who were
never gender dysphoric.
Remove
all reference to gender nonconforming expression in diagnostic
criteria and supporting text.
Remove
archaic “aversion” clauses in diagnostic criteria
regarding “rough and tumble play” and “normative
feminine clothing”
Speficically
exploring the diagnosis of children, the criteria should also center
upon gender dysphoria rather than gender nonconformity. A boy can
enjoy activities which are stereotypically feminine and still feel
confident that he is a boy and be happy with his body. He should not
receive this diagnosis as he does not have gender dysphoria. If he
is happy with himself and functioning well he does not have a
mental illness at all. If he is suffering due to relationship
problems with family or peers another diagnostic category would be
more appropriate just as would be used for a boy who is suffering
because he is ridiculed on some other grounds, such as weight or
religion. It can be useful in diagnoses describing children to
provide behavior examples as children may not be able to verbalize
their inner states as well as adolescents or adults. However those
examples should be centered upon gender dysphoria rather than
behavior that adults label as 'male typical' or 'female typical.'
Examples should
include a natal female who is distressed by lack of a penis or a
natal male who is distressed by the presence of one. The current
criteria seem to equate the dislike of rough and tumble play in a
natal male to distress because a natal male wishes his penis would
disappear, and this equation is not conceptually sound. While it may
be common for natal males who experience gender dysphoria to dislike
rough and tumble play, this is not per se an expression of gender
dysphoria in and of itself.
Appropriate
Diagnostic Inclusion:
The
Goldilocks Test: Gender Dysphoria Dx should be
- not
too big,
- not
too small,
- but
just right.
-
In
the Story of Goldilocks and the Three Bears, a young antagonist
seeks that which is “just right” in her journey of
burglary and criminal trespass: not too hard, not too soft, not too
hot or cold, but just right. Psychiatric diagnosis should similarly
fit the needs of the patients and society: not inappropriately
overinclusive, not exclusive of those who need care, but just right.
Inclusion
of Those Who Need Care :
Clarify
anatomical dysphoria to include:
Include
full spectrum of human diversity as legitimate gender identities and
expressions.
An
InRemission specifier to provide care to those no longer dysphoric
Diagnostic
nomenclature should be inclusive enough to meet the needs of those
who need care. We recommend that criteria clarify the anatomical
component of gender dysphoria to include clinically significant
distress with current sex characteristics that are incongruent with
gender identity, including distress caused by deprivation of
characteristics that are congruent with inner identity. These should
encompass anticipated sex characteristics for gender dysphoric youth
approaching puberty as well.
Diagnostic criteria and
supporting text should respect a diverse spectrum of gender
identities and expression that are beyond stereotypical binary sex
stereotypes. We suggest that dichotomous language such as
“cross-gender,” “other sex” and “opposite
sex” be removed.
Finally, we suggest that an
InRemission specifier may be necessary for individuals who
previously met the diagnostic criteria, whose dysphoria has been
successfully ameliorated, and who require ongoing access to medical
or mental health care to maintain relief from dysphoria. The
supporting text should clarify when the diagnosis and specifier
would no longer apply to an individual.
Reduction
of False-Positive Diagnosis:
Limit
Dx to those experiencing dysphoria
Exclude
those who are merely gender non-conforming
Another
concern with the current GID category is false-positive diagnosis of
people who meet no definition of mental disorder and suffer no
distress or impairment with their bodies or ascribed roles. For
example, children may be diagnosed with GID strictly on the basis of
gender role nonconformity with no evidence of distress with their
born bodies or assigned role. We recommend that all references to
attypical or nonconforming gender expression be removed from the
diagnostic criteria. They are not relevant to the definition of
mental disorder and equate difference in itself to disease.
Exit
Path for those who are no longer dysphoric
Remove
'cross-gender' and 'other sex' language
Remove
pathological description of transition
Remove
'conviction' and 'belief' language
Moreover,
there is no exit clause to the GID diagnosis for those who have
transitioned and gained relief from gender dysphoria, regardless of
how happy and well adjusted they are. For example, post-transition
individuals are permanently trapped in criteria A and B by language
of nonconformity to assigned birth sex. For example, Criterion A
includes the clauses,
“desire to be the other sex,
frequent passing as the other sex, desire to live or be treated as
the other sex, or the conviction that he or she has the typical
feelings and reactions of the other sex,”
as
symptomatic of mental illness, where “other sex” means,
other than assigned birth-sex. These assertions would remain true
for all happy, ego-syntonic individuals who have transitioned, who
for the rest of their lives would meet Criterion A.
Criterion
B historically was the gender dysphoria criterion before the DSM-IV.
However, gender dysphoria is rendered moot by the clause,
“belief
that he or she was born the wrong sex.”
Again,
virtually all happy, well adjusted, transitioned people will always
believe that they were born or assigned the wrong sex and will
therefore always meet Criterion B. Like the Hotel California, there
is no escape from a GID diagnosis.
“You can check out
any time you like, but you can never leave.”
We
recommend removal of “cross-gender” and “other
sex” language, pathological descriptions of transition, as
well as clauses describing beliefs and convictions as pathological.
Issue:
Should diagnosis be limited to anatomic gender dysphoria, or should
social role dysphoria be included?
An
issue for discussion is the scope of gender dysphoria for diagnostic
purposes. Should it be limited to anatomical dysphoria as just
described, or should it also include social gender dysphoria, that
is distress with ascribed or assigned gender role? While no clinical
assessment is necessary for social gender role transition for many
individuals, access to medical transition procedures, such as
hormones or FTM chest reconstruction, is prerequisite to social
transition for others. For this reason, we include both anatomic and
social gender dysphoria in our recommendation for diagnostic
criteria.
Transvestic
Fetishism: -
- Recommendation:
Remove the diagnostic category of Transvestic Fetishism (TF), in the
Paraphilias section.
-
- It
equates crossdressing and expression of femininity by born males
with sexual deviance.
-
Located
in the Paraphilias section with pedophilia, exhibitionism, and
voyeurism, Transvestic Fetishism equates crossdressing and
expression of femininity by birth-assigned males with sexual
deviance. Ambiguous language in Criteria A and B may implicate all
transwomen, including transsexual women, who are birth-assigned
male, attracted to women, wear clothing that is typical or ordinary
for other women, and are distressed by social prejudice as
perpetually diagnosable. In fact, the DSM-IV Casebook, edited by
Robert Spitzer, recommends a diagnosis of Transvestic Fetishism for
a male whose cross-dressing is not necessarily sexually motivated
and whose only impairment is an intolerant spouse.
Dr. Ray
Blanchard, chair of the Paraphilias Subcommittee of the DSM-V
Workgroup for Sexual and Gender Identity Disorders, has proposed to
retain these flawed diagnostic criteria and add the pejorative label
of “autogynephilia” to the diagnosis, as a specifier for
transsexual women.
The Transvestic Fetishism diagnosis
benefits no one and yet inflicts harm on all who do not conform to a
male birth-assignment. We urge that it be removed entirely from the
DSM-V.
Location
in the DSM:
GID
Dx in Sexual & Gender Identity Disorders is neither clinically
accurate nor palatable to many transpeople
Alternate
Location in the DSM?
Separate
section within Axis I
Disorders
generally first diagnosed in infancy, childhood, or adolescence
Anxiety
disorders
We
all agree that gender dysphoria in the Sexual and Gender Identity
disorders section is neither clinically accurate nor palatable to
most people in the transgender community. We also agree that there
are three possible places that GD could go and that any of these
would be an improvement on the current placement. However we
disagree on which could be the best location. Possible
classification is 1) in a separate category including the diagnosis
in adults, children, and adolescence as well as other possible
conditions relating to ones gender identity, 2) Disorders usually
first diagnosed in infancy, childhood, or adolescence, and 3)
Anxiety disorders. -
A
separate category would eliminate concerns about drawing connections
to other diagnoses in that group (much as transgender people now
object to being in the group containing pedophilia). However a
separate class under Axis 1 might appear awkward and might eliminate
scientific and research accuracy by failing to draw valid
connections to other disorders in a class. For example the vast
majority of transgender people report awareness of their gender
identity was present in childhood or adolescence. In addition
transgender people often experience significant trauma making PTSD
and anxiety disorders in some ways related.) -
Classification
in disorders first diagnosed in infancy, childhood or adolescence
could be helpful given that most transgender people understood their
gender identity before adulthood and this location would be less
objectionable than classing it with paraphilias. However similar
objections could be raised by people who object to describing
transgender people as a form of developmental delay or aberration. -
Classification
within anxiety disorders could facilitate understanding that many of
the adverse mental health symptoms transgender people experience
stem from the trauma that patients experience due to either
sublimating their gender identity or due to the discrimination to
which they are subject by being gender non-conforming. However this
might also suggest a connection with OCD which might misplace a
focus on patients seeking transition related care as being obsessed.
This may suggest that proper treatment might be to end the
obsession-compulsion cycle with medication or therapy aimed at
changing a patient's core gender identity.
Nomenclature
Affects Individuals:
There
are two primary problems in nomenclature and terminology: the name
of the diagnosis as well as the pronouns and description of the
sexual orientation of transgender people. Even someone like me who
agree that GID is a reasonable (albeit improvable) term still
objects vehemently to referring to me with female pronouns or
describing my sexual orientation as heterosexual because my
affectional preference is for men. The academic tradition of using
pronouns and describing sexual orientation in reference to gender as
assigned at birth is not only hurtful to individuals and increases
the conflict between the medical and transgender communities but its
also inaccurate and confusing to people not well versed in the
transgender literature. If
you described me as heterosexual, most people would be very
surprised to find out that my partner is a man. If you described me
as a heterosexual female transsexual, most people would be very
confused and might in fact think that I
was an MTF person who was pre-transition. Moreover even in the
academic community there is no longer a common standard adding to
the confusion in the literature. The supporting information in any
revision should set the academic nomenclature so that its consistent
and respectful of transgender identities. And academic traditions do
evolve with our understanding. Its really time to get rid of inches
and all use the metric system.
Affirming
Language:
Transitioned
individuals should be described with pronouns and terms of their
affirmed gender.
Gender
neutral terms should be used to describe people where transition
status is not known.
“Autogynephilia”
has multiple ambiguous meanings, many of which are maligning and
offensive to many transsexual women. Usage not constructive in the
DSM.
We
should use the system that is most logical and understandable by
everyone who accesses the literature whether they are scientists,
clinicians, or laymen from within or outside of the transgender
community. This system would mean that transgender people should
be referred to by the pronoun and terms of their affirmed gender. In
cases where we don't know, using gender neutral terms should
be appropriate. Finally, Autogynephilia as it has been used is such
a diffuse term encompassing definitions including discreet
experiences, etiological theory about transgender women, or a formal
diagnosis such as Dr. Ray Blanchard's proposed modification for
transvestic fetishim that it has really lost much of its utility.
Given that it has such limited utility along with the fact that it
is the proverbial red rag to the bull in the transgender community,
we might be best off if we let it die off. This is not actually
something unusual in medicine or science. The medical term
'mongolism' became Downs' Syndrome, and recently since people have
realized that Dr Downs was actually a racist who espoused eugenicist
principles many in the medical community are avoiding this eponym
and simply calling it trisomy 21.
Proposed
Diagnostic Label:
Name
Location
Separate
category (W, E, G)
Disorders
commonly dx'd in infancy through adolescence (E, G)
(Anything’s
better than 302)
So
we propose a diagnosis that looks like this: Changing the name to
reflect the fact that it focuses on the dysphoria rather than
identity as the defining characteristic of a disorder. Two proposed
names that we could agree on are Gender Dysporia or Gender
Dissonance with or without the 'incongruent' modifier. Gender
dysphoria is particularly useful because it is a term already used
in the art and diagnostic language. It is also quite descriptive if
we are focusing on the dysphoria itself.
With
regard to location, we would all accept it being in a separate Axis
1 category. Randall and I
(Nick)
would also accept it being in disorders commonly diagnosed in
childhood and infancy. However we can all agree that anywhere is
better than 302 (sexual and gender identity disorders.)
Proposed
DX Criteria: Both A & B:
So
we are getting close to finishing the didactic portion of this
session... I
am going to summarize what we've come up with as a diagnostic scheme
that we could all live with. It is not that far off what many people
seem to be talking about, but it includes some things that will make
it more broadly acceptable to people across the spectrum of beliefs
about pathology and utility of the diagnosis.
We
have two proposed criteria for adult and adolescent gender
dysphoria, both of which must be met:
A:
Strong and persistent distress with physical sex characteristics, or
ascribed social gender role, that is incongruent with persistent
gender identity.
B:
The distress is clinically significant or causes impairment in
social, occupational, or other important areas of functioning, when
this distress or impairment is not solely due to external prejudice
or discrimination.
GD
In-Remission Specifier:
We
also feel that a specifier for GD in remission should
be included. But in order to include that we should define what we
mean. When any disease is 'in remission' that implies that it no
longer causes symptoms or problems but it would likely re-manifest
if treatment was stopped. A cured disease is one that one does not
expect to return even without continued treatment.
The
utility of an in remission specifier is two fold. First it has
pragmatic utility. A trans person might no longer manifest or
experience any clinically significant dysphoria but even so, that
doesn't mean that treatments can be safely stopped. We do not want
to give insurers or health care systems the opportunity to justify
such a cessation because this could set transgender people up on a
cycle where they resolve their dysphoria, be deprived of treatments,
then become dysphoric again and thus re-qualify for treatment.
Additionally, an ongoing diagnosis, even if in remission could
allow transgender people to continued access to certain disability
protections and accommodations.
Moreover
an 'in remission' specifier is more diagnostically accurate. For
example a transgender man who has successfully transitioned
physically and socially to the full extent that is appropriate for
him who is for some reason deprived of ongoing hormonal treatment
may or may not experience a return of gender dysphoria. For example
if he has not had hysterectomy and oophorectomy, cessation of
hormones could result in resumption of menstrual cycles. This may
cause a return of symptoms, whereas if he had undergone a
hysterectomy/oophorectomy he might have menopausal symptoms but not
a return of dysphoria.
So
the in remission specifier would state:
Patient
previously met the diagnostic criteria for GD (whether or not he or
she received a formal dx), AND
Patient
no longer has symptoms sufficient to merit a mental health
diagnosis, AND
Patient
has ongoing need for GD specific health care in order to maintain
remission
GD
in Remission: Supporting Text:
That
3rd
qualifier – that ongoing treatment be necessary to maintain
remission actually makes room for the 'exit clause' that many people
in the transgender community advocate for. With this specifier it
would be the case that lack of distress and or real risk for the
return of distress without treatment would mean no diagnosis is
applicable. In order to make this explicit the supporting text could
specify that:
Individuals
felt by both themselves and a mental health provider to not likely
have a recurrence of GD qualifying symptoms if deprived of future
medical, surgical, or mental health care would not meet the criteria
for either GD or GD in Remission and would no longer be considered
to have a mental health condition.
Summary:
It's
about Dysphoria
Respectful
Language
Not
too Big; Not too Little; but Just Right
Accurate
Classification Placement
Remove
Tranvestism/Fetishism Categories
Our
main points are: 1) gender dysphoria is the conceptual center of the
diagnosis, 2) use respectful language in nomenclature and
description of individuals, 3) include those who are in need of
inclusion, do not include those who should not be, 4) move the
diagnosis out of the sexual and gender identity disorders chapter,
5) and remove transvestic fetishim.
Summary
of Proposed Diagnosis:
Dx
Criteria – Both A and B
A:
Strong and persistent distress with physical sex characteristics, or
ascribed social gender role, that is incongruent with persistent
gender identity.
B:
Distress is clinically significant or causes impairment in social,
occupational, or other important areas of functioning, when this
distress or impairment is not solely due to external prejudice or
discrimination.
GD
in remission
No
longer meets criteria, needs treatment to maintain remission
'Exit
clause'
No
longer meets criteria, doesn't need treatment to maintain remission
Regardless
of our viewpoint on such fundamental issues as whether there should
be a diagnosis, there are principles of what diagnostic categories
should look like such as centering upon gender dysphoria rather than
gender identity or conformity, including all people who experience
gender dysphoria but not people who do not. We also hope that you
will find not only our proposals for nomenclature, categorization
and criteria but also this discussion helpful. Please take a look
at our nifty website for a recap and further information.
Further Reading:
www.gidreform.org/wpath2009/
About the Authors:
Randall Ehrbar is a clinical psychologist with extensive training and experience working with transgender clients. He has also been actively involved in the American Psychological Association’s efforts to address transgender concerns.
Kelley Winters is a writer and consultant on gender diversity issues in medical, employment and public policy.
Nicholas Gorton is a medical doctor who provides primary care to many transgender clients at Lyon Martin Health Services
Copyright © 2009 Randall Ehrbar, Kelley Winters, Nicholas Gorton
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